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Cargando... Degrees of Difficulty (2019)por Julie E. Justicz
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"Love is the foundation of family, but at what cost? After Ben Novotny is born with a rare chromosomal disorder that produces profound mental disability and brain-racking seizures, his parents, Caroline and Perry, and their two other children are asked to give more than they have. When Ben is an infant, the care and the fear are constant. The demands and pressure only mount when he and his older brother and sister become teenagers. Ben needs even more from his family, just as Hugo, the athlete and the 'good soul', and Ivy, the ambitious rebel, must carve out their own identities. Over the span of decades, this deep and understanding novel follow each family member, Perry and Caroline, Hugo and Ivy, as their lives diverge. In Degrees of Difficulty, grace is found amidst heartache, love finds a way after loss."--Provided by publisher. No se han encontrado descripciones de biblioteca. |
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Google Books — Cargando... GénerosSistema Decimal Melvil (DDC)813.6Literature English (North America) American fiction 21st CenturyValoraciónPromedio:
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The narrative follows the experiences of each member of the family: mother Caroline, father Perry, the two older children Hugo and Ivy focusing on each, chapter by chapter. Their lives and relations with each other are shared as they handle the every day and the added burden of the youngest boy, Ben, who is mentally-challenged and prone to severe seizures. At one point, after Ben has been rejected by yet another institution, Perry thinks to himself that it has been "one long and desperate road." That seems an appropriate metaphor for much of what each member of the family encounters in this story.
The author invokes prose that is both suspenseful and beautiful in relating important moments in their lives. The difficulties mount, but there is more to the story than just hardships. Rather it is a complex tale in which their lives are not completely subsumed by sadness and strains as they also experience moments of joy and contemplation that ameliorate the pain in their lives. This is an exceptional first novel from the pen of Julie E. Justicz. Readers who enjoy well-written narratives of real people dealing with the vicissitudes of life will appreciate her novel. ( )