PortadaGruposCharlasMásPanorama actual
Buscar en el sitio
Este sitio utiliza cookies para ofrecer nuestros servicios, mejorar el rendimiento, análisis y (si no estás registrado) publicidad. Al usar LibraryThing reconoces que has leído y comprendido nuestros términos de servicio y política de privacidad. El uso del sitio y de los servicios está sujeto a estas políticas y términos.

Resultados de Google Books

Pulse en una miniatura para ir a Google Books.

Cargando...

La vida inmortal de Henrietta Lacks

por Rebecca Skloot

Otros autores: Ver la sección otros autores.

MiembrosReseñasPopularidadValoración promediaConversaciones / Menciones
14,182729385 (4.16)2 / 858
Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer, yet her cells--taken without her knowledge--became one of the most important tools in medicine. The first "immortal" human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer and viruses; helped lead to in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks is buried in an unmarked grave. Her family did not learn of her "immortality" until more than twenty years after her death, when scientists began using her husband and children in research without informed consent. The story of the Lacks family is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.… (más)
  1. 140
    The Spirit Catches You and You Fall Down por Anne Fadiman (kidzdoc)
  2. 60
    Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present por Harriet A. Washington (lives4laughs, fannyprice)
  3. 50
    The Warmth of Other Suns: The Epic Story of America's Great Migration por Isabel Wilkerson (bunnygirl)
    bunnygirl: personal history and stories linked with the larger African American history. if you were wondering about Skloot's reference to the Lacks family being part of the Great Migration, this book explains exactly what it is and tells the stories of three families in a similar manner.… (más)
  4. 83
    Stiff: The Curious Lives of Human Cadavers por Mary Roach (VenusofUrbino)
    VenusofUrbino: If you like well-researched and well-written non-fiction like "Immortal Life" then you will also appreciate Mary Roach.
  5. 40
    A Lesson Before Dying por Ernest J. Gaines (krazy4katz)
    krazy4katz: Reading "The Immortal Life of Henrietta Lacks," I was pained by the impoverished lives of people who still lived on plantations in the 1940s - lack of schooling, lack of health care, lack of any kind of decent housing etc. "A Lesson Before Dying" more directly addresses the life of people still living on plantations in the '40s. Even though I sort of knew this, it was an emotional shock to truly recognize that all the abuse and oppression did not end with the Civil War but was still there 80 years later.… (más)
  6. 30
    The Body Hunters: Testing New Drugs on the World's Poorest Patients por Sonia Shah (legxleg)
  7. 41
    Better: A Surgeon's Notes on Performance por Atul Gawande (Othemts)
  8. 20
    The Great Influenza: The Story of the Deadliest Pandemic in History por John M. Barry (LKAYC)
  9. 20
    The Plutonium Files: America's Secret Medical Experiments in the Cold War por Eileen Welsome (barbharris1)
  10. 20
    The Mapmaker's Wife: A True Tale of Love, Murder, and Survival in the Amazon por Robert Whitaker (sboyte)
    sboyte: Fascinating stories of the people behind great scientific discoveries.
  11. 20
    Rosalind Franklin: The Dark Lady of DNA por Brenda Maddox (beyondthefourthwall)
  12. 10
    Life Itself: Exploring the Realm of the Living Cell por Boyce Rensberger (BookshelfMonstrosity)
    BookshelfMonstrosity: Cell cultures are being used to study diseases as well as cure them. Learn about the cell cultures called 'HeLa' in The Immortal Life of Henrietta Lacks, and read about cell cultures' utility as a whole in Life Itself.
  13. 21
    The Wandering Gene and the Indian Princess por Jeff Wheelwright (LeesyLou)
    LeesyLou: If you have an interest in the social and personal ethics and background of medical care, this adds to your understanding. Minority cultures and personal medical ethics are equally poorly understood by many practitioners.
  14. 10
    The Juggler's Children: A Journey into Family, Legend and the Genes that Bind Us por Carolyn Abraham (sboyte)
  15. 10
    The Mockingbird Next Door: Life with Harper Lee por Marja Mills (akblanchard)
    akblanchard: In both books, journalists get personally involved with their subjects.
  16. 10
    The Forever Fix: Gene Therapy and the Boy Who Saved It por Ricki Lewis (krazy4katz)
    krazy4katz: Both of these books capture and humanize the process of medical discovery and the experiences of the patients. Although the authors have somewhat different backgrounds — Rebecca Skloot is a journalist with an undergraduate degree in biology, whereas Rikki Lewis has a PhD in genetics — I think the discussion of the scientific issues and the ethical issues regarding informed consent would appeal to the same readers.… (más)
  17. 10
    Truevine por Beth Macy (akblanchard)
    akblanchard: Unusual medical conditions and racism as experienced by African Americans in the Jim Crow South.
  18. 12
    Adorada Jenna Fox por Mary E. Pearson (macart3)
    macart3: Deals with bioethics and human experimentation without others' consent.
  19. 12
    Tissue and cell donation : an essential guide por Ruth M. Warwick (Limelite)
    Limelite: Scientific discussion of medical/ethical, and other considerations regarding patients' rights and the medical profession's responsibilities on the subject, as well as other pertinent procedures.
  20. 04
    The Dangerous Joy of Dr. Sex and Other True Stories por Pagan Kennedy (Othemts)

(Ver todas las (20) recomendaciones)

Cargando...

Inscríbete en LibraryThing para averiguar si este libro te gustará.

» Ver también 858 menciones

Inglés (724)  Francés (1)  Sueco (1)  Catalán (1)  Japonés (1)  Alemán (1)  Todos los idiomas (729)
Mostrando 1-5 de 729 (siguiente | mostrar todos)
A fascinating book for the science needs among us, a heart-rending book for those who feel the horrors of Henrietta’s life, an interesting ethical discussion about who owns your bits once you have them taken out.
I was astonished, even though I’d heard about Henrietta Lacks and her amazing cells, to find out how very far they’d gone, how much science had benefited from them. We have all sorts of medicines and understanding of cell functions, vaccines and grasp of cell culturing, all over the world. Henrietta’s astoundingly virulent cancer cells made the development of the polio vaccine possible, for example. The cells also forced researchers to use enhanced sterile techniques as if a HeLa cell got into your cell cultures it would kill off every other type of cell…
I’ve been meaning to read this book for ages and I’m glad I finally did. I am still curious about how such a virulent cancer developed- of course people at the time blamed Henrietta and accused her of sleeping around (she did have syphillis), but her husband’s role in giving her the virus that caused her cancer is never mentioned. I find that sad. I find it sad, too, that her family tossed her into an unmarked grave, unmourned by most of them for years.
The ethics of taking tissue samples from a dying woman without her consent remain huge, but as Sklootide identified in her research, we all end up donating our discarded bits whether we want to or not- they are sliced off of us and considered waste- unless someone wants to take them and use their DNA in research.
For me, this isn’t a big thing. I figure if they can use any of me that I’m no longer using, go for it. But the grinding poverty the Lacks family endured while Henrietta’s cells were re-sold (Johns Hopkins didn’t sell them- they shared them widely and free to aid research) seems evil. But then the grinding poverty and lack of access to medical care in the US IS wrong. A caring society would not allow it to persist. ( )
  Dabble58 | Nov 11, 2023 |
One of the best pieces of nonfiction I've read in years. ( )
  emmby | Oct 4, 2023 |
Actually, read via audiobook. A fascinating story. ( )
  schoenbc70 | Sep 2, 2023 |
Read this one for our Fall 2013 UNCG campus read with our first-year students. Found the content compelling and relatable - lots of perspectives that can be explored and discussed in our classes! Also very personally relevant. ( )
  AmandaPelon | Aug 26, 2023 |
Science writer Rebecca Sloot dives into a study of medical ethics in the United States, (and the lack thereof), in this book about the theft of the HeLa cells, taken without consent or knowledge from the cancer ridden body of Henrietta Lacks, (an impoverished, thirty year old black mother of small children who was wracked with cervical cancer), while she was in the hospital for treatment. Her family was distressed. "Everybody always says Henrietta Lacks donated those cells but she didn't donate nothing. They took them and didn't ask."

Since 1951, the study of Henrietta's duable, prolific cells, (the first immortal cell line), led to breakthroughs in research and trials from the polio vaccine to in vitro fertilization, gene mapping, and cloning.

Henrietta was a pilfered pioneer; her cells sold to medical labs the world over, made millions of dollars for medical industry, but those profiting failed to inform, obtain consent, or compensate Henrietta's family, who were repeatedly lied to by doctors. The family was horror stricken when, decades later, they found out their mother's cells were being kept alive in labs, sent into outer space, and put through countless trials; they wondered if Henrietta's soul was suffering from these scientific experiements.

"Hopkins say they gave them cells away," Lawrence, yelled, "but they made millions. It's not fair! She's the most important person in the world and her family living in poverty. If our mother so important to science, why can't we get health insurance?" The family never got a penny of the prodigious profit.

Skloot's book is a primarily a buddy story; the relationship is between the writer and Henrietta's daughter, Deborah, who grew up without her mother. Rebecca skillfully juggles a tale that features a history of rascism, poverty, and more as it relates to medical exploitation, along with the story of Deborah and the other Lackes as they struggle to make sense of what was done to their mother.

Another example of a biological patent appropriated without permission that Skloot includes in the book is that of John Moore. Moore had a rare cancer called hairy-cell Leukemia. His cells made rare proteins that could contribute to cancer therapies and the development of an AIDS vaccine.

Drug companies were willing to pay enormous sums to work with Moore's cells. Dr. David Golde, a cancer researcher at UCLA, told Moore he had to have his spleen removed and his tissue would be cremated. Golde, however, had entered into agreements with a biotech company that gave him stocks and financing worth more than $3.5 million to "commercially develop" and "scientifically investigate" the Mo cell line. At that point it's market value was estimated to be $3 billion.

"It was very dehumanizing to be thought of as Mo, to be referred to as Mo in the medical records: 'Saw Mo today' All of a sudden I was not the man Golde was putting his arm around, I was Mo, I was the cell line, like a piece of meat."

The idea of patient consent is a misleading formality overall. "The term informed consent first appeared in a document in 1957, in a civil court ruling on a patient named Martin Slago. He went under anesthesia for what he thought was a routine procedure and woke up permanently paralyzed from the waist down. The doctor hadn't told him the procedure carried any risks at all. The judge ruled against the doctor saying, "A physician violates his duty to the patient and subjects himself to liability if he withholds any facts which are necessary to form the basis of an intelligent consent by the patient to the proposed treatment. He wrote that there needed to be full disclosure of facts necessary to an informed consent."

Lack of honesty in the so-called medical consent process has created a profusion of problems for the public who rely on medical professionals to be fully candid and careful, not cavalier cons. As a patient safety activist, this story riled me up and raised even more questions about the medical industry than I had before. ( )
  Sasha_Lauren | Aug 15, 2023 |
Mostrando 1-5 de 729 (siguiente | mostrar todos)
Skloot narrates the science lucidly, tracks the racial politics of medicine thoughtfully and tells the Lacks family’s often painful history with grace. She also confronts the spookiness of the cells themselves, intrepidly crossing into the spiritual plane on which the family has come to understand their mother’s continued presence in the world. Science writing is often just about “the facts.” ­Skloot’s book, her first, is far deeper, braver and more wonderful.
 
I put down Rebecca Skloot’s first book, “The Immortal Life of Henrietta Lacks,” more than once. Ten times, probably. Once to poke the fire. Once to silence a pinging BlackBerry. And eight times to chase my wife and assorted visitors around the house, to tell them I was holding one of the most graceful and moving nonfiction books I’ve read in a very long time.
 
Writing with a novelist's artistry, a biologist's expertise, and the zeal of an investigative reporter, Skloot tells a truly astonishing story of racism and poverty, science and conscience, spirituality and family, all driven by a galvanizing inquiry into the sanctity of the body and the very nature of the life force.
añadido por sduff222 | editarBooklist, Donna Seaman (Dec 1, 2009)
 
Henrietta Lacks died of cervical cancer in a “colored” hospital ward in Baltimore in 1951. She would have gone forever unnoticed by the outside world if not for the dime-sized slice of her tumor sent to a lab for research eight months earlier. ...
Skloot, a science writer, has been fascinated with Lacks since she first took a biology class at age 16. As she went on to earn a degree in the subject, she yearned to know more about the woman, anonymous for years, who was responsible for those ubiquitous cells....
 
Skloot tells a rich, resonant tale of modern science, the wonders it can perform and how easily it can exploit society's most vulnerable people.
añadido por Shortride | editarPublishers Weekly
 

» Añade otros autores (9 posibles)

Nombre del autorRolTipo de autor¿Obra?Estado
Rebecca Sklootautor principaltodas las edicionescalculado
Campbell, CassandraNarradorautor principalalgunas edicionesconfirmado
Turpin, BahniNarradorautor principalalgunas edicionesconfirmado
Acedo, Sara R.Diseñador de cubiertaautor secundarioalgunas edicionesconfirmado
Grip, GöranTraductorautor secundarioalgunas edicionesconfirmado
Townsend, MandaFotógrafoautor secundarioalgunas edicionesconfirmado

Tiene como guía/complementario de referencia a

Premios

Distinciones

Listas de sobresalientes

Debes iniciar sesión para editar los datos de Conocimiento Común.
Para más ayuda, consulta la página de ayuda de Conocimiento Común.
Título canónico
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
Título original
Títulos alternativos
Fecha de publicación original
Personas/Personajes
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
Lugares importantes
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
Acontecimientos importantes
Películas relacionadas
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
Premios y honores
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
Epígrafe
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
We must not see any person as an abstraction.
Instead, we must see in every person a universe with its own secrets,
with its own treasures, with its own sources of anguish,
and with some measure of triumph.

----Elie Wiesel
from The Nazi Doctors and the Nuremberg Code
Dedicatoria
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
For my family:

My parents, Betsy and Floyd; their spouses, Terry and Beverly;
my brother and sister-in-law, Matt and Renee;
and my wonderful nephews, Nick and Justin.
They all did without me for far too long because of this book,
but never stopped believing in it, or me.

And in loving memory of my grandfather,
James Robert Lee (1912-2003),
who treasured books more than anyone I've known.
Primeras palabras
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
On January 29, 1951, David Lacks sat behind the wheel of his old Buick, watching the rain fall.
Citas
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
...But I always have thought it was strange, if our mother cells done so much for medicine, how come her family can't afford to see no doctors? Don't make no sense. People got rich off my mother without us even knowin about them takin her cells, now we don't get a dime. I used to get so mad about that to where it made me sick and I had to take pills. But I don't got it in me no more to fight. I just want to know who my mother was.
----Deborah Lacks
When I tell people the story of Henrietta Lacks and her cells, the first question is usually Wasn't it illegal for doctors to take Henrietta's cells without her knowledge? Don't doctors have to tell you when they use your cells in research? The answer is no--not in 1951, and not in 2009, when this book went to press.
Últimas palabras
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
(Haz clic para mostrar. Atención: puede contener spoilers.)
(Haz clic para mostrar. Atención: puede contener spoilers.)
(Haz clic para mostrar. Atención: puede contener spoilers.)
Aviso de desambiguación
Editores de la editorial
Blurbistas
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
Idioma original
Información procedente del conocimiento común inglés. Edita para encontrar en tu idioma.
DDC/MDS Canónico
LCC canónico
Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer, yet her cells--taken without her knowledge--became one of the most important tools in medicine. The first "immortal" human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer and viruses; helped lead to in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks is buried in an unmarked grave. Her family did not learn of her "immortality" until more than twenty years after her death, when scientists began using her husband and children in research without informed consent. The story of the Lacks family is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.

No se han encontrado descripciones de biblioteca.

Descripción del libro
Resumen Haiku

Debates activos

Ninguno

Cubiertas populares

Enlaces rápidos

Valoración

Promedio: (4.16)
0.5 1
1 33
1.5 1
2 100
2.5 21
3 478
3.5 154
4 1495
4.5 261
5 1374

¿Eres tú?

Conviértete en un Autor de LibraryThing.

 

Acerca de | Contactar | LibraryThing.com | Privacidad/Condiciones | Ayuda/Preguntas frecuentes | Blog | Tienda | APIs | TinyCat | Bibliotecas heredadas | Primeros reseñadores | Conocimiento común | 197,596,529 libros! | Barra superior: Siempre visible