Pulse en una miniatura para ir a Google Books.
Cargando... Babies With Down Syndrome: A New Parents Guidepor Karen Stray-Gundersen
Ninguno Cargando...
Inscríbete en LibraryThing para averiguar si este libro te gustará. Actualmente no hay Conversaciones sobre este libro. sin reseñas | añadir una reseña
Pertenece a las seriesEdition 21 (2)
Uno de los defectos de nacimientos más comunes, el Síndrome de Down, es causado por una anormalidad cromosómica la cual ocurre en uno de cada ochocientos niños. Los niños con síndrome de Down pueden presentar varias características físicas únicas y problemas médicos, y es muy posible que tengan algún grado de retardo mental. Este libro, de reciente publicación, es consultado por miles de padres como primera fuente de información en este síndrome común. Una traducción cuidadosa de la edición en inglés ha mantenido el contenido del libro y es el primero en español de la Colección Necesidades Especiales, la aclamada serie sobre discapacidades. Escrito por un grupo de padres entendidos, médicos, terapeutas, profesores y abogados, cubre todos los temas que los padres necesitan saber sobre la crianza de sus hijos, inclusive problemas médicos, educacionales, y emocionales, como también cuidado diario, vida familiar, y derechos legales. No se han encontrado descripciones de biblioteca. |
Debates activosNingunoCubiertas populares
Google Books — Cargando... GénerosSistema Decimal Melvil (DDC)618.92Technology Medicine and health Gynecology and Pediatrics Pediatrics & Geriatrics Pediatric CareClasificación de la Biblioteca del CongresoValoraciónPromedio:
¿Eres tú?Conviértete en un Autor de LibraryThing. |
What I appreciated most was the book's focus on the potential increased odds of health complications which can arise with children born with DS, and what to look out for and ask your doctor about (who may not be that well versed in DS) -- heart abnormalities, gastrointestinal problems, hypotonia, vision and hearing problems, leukemia, on and on, that, while not comforting, at least perhaps mentally prepares the parent for the possible rocky-health-road ahead.
The book offers hope too, in a non-didactic, non-preachy way, for the parent who perhaps has learnt a few months in to the pregnancy (like my wife and I did, and a fact much more common these days with amniocentesis being recommended for all pregnancies) that their baby will in fact be born with DS.
The book offers real hope that your child with DS won't be a scary baby monster that will ruin your life. Oh, life will be more difficult, yes, no doubt, but a pre-birth diagnosis of DS, the book opines (and I tend to agree), doesn't necessarily mean making an impromptu appointment with Planned Parenthood. Statistically, of course, most who learn of their DS diagnosis in utero do make that appointment with Planned Parenthood, but the book demonstrates with lots of longitudinal research and anecdotal evidence that oftentimes, babies born with DS have no extra health problems at all, except for the obvious, innate "slowness" in development, particularly in speech, as compared to non-developmentally disabled children.
I'm glad this book was available for my wife and I during that difficult time when we were advised abortion was our best, if not only, option. Yes, after two complicated open heart surgeries (both of them near-death experiences for our daughter), along with upper G.I. complications, multiple knee surgeries because of her hypotonia (i.e., "low muscle tone") hearing and vision problems (but thankfully, no leukemia, knock on wood), I'm glad we considered the path less traveled by in keeping our child diagnosed with Down syndrome. She's a treasure and a beauty and our lives, despite the daily hardships, would be a lot emptier -- and a lot less meaningful -- without her. ( )