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Cargando... Karen (1952 original; edición 2016)por Marie Killilea (Autor)
Información de la obraKaren por Marie Killilea (1952)
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Inscríbete en LibraryThing para averiguar si este libro te gustará. Actualmente no hay Conversaciones sobre este libro. This is one of those classic books that deserves a 5 star review. For the inspiring story that it is, for the superb writing, the humor, grit, honesty and the history behind it as well. Marie Killilea tells the story of her daughter Karen, who was born with cerebral palsy in the early 1940's, a time when PT and OT services were virtually non-existent. The story includes anecdotes, conversations, struggles, and also a parallel story of how Mrs. Killilea helped found the National United Cerebral Palsy Foundation. Delightful and inspiring. This was my second reading of the book. I'm reading the sequel now for the first time! Every time I read my copy, I'm blown away by Karen's story. She overcame so much to achieve a productive life after her parents were told to leave her in an institution and forget they ever had her. The family as a whole provided support and hope for thousands of other families struggling with CP and without the Killileas, development of CP devices and surgeries would have been held back for many decades. Even without all of that, you will fall in love with the entire family. I wish I knew where they all were now! There is something special about my child… I knew it from the moment she was born… A minute morsel, she weighed under two pounds, and measured 9 inches from the tip of her tiny head to her in infinitesimal toes… I lay back. Still, bathed in happiness. It was like a brittle shell, this happiness, and I felt that motion or sound might shatter it… I could still feel the surge of unbelievable wondering. Enjoy evoked by the babies lusty yell."What do you think of our child? Is she is pretty, as Marie? Did you count her fingers and toes?"…He said that at the foot of the bed and I waited for him to express his delight."You must realize"––John spoke gently–-"she's not out of the woods yet."A gust of cold air entered my son – drenched room and I shivered… sin reseñas | añadir una reseña
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Winner of the Christopher Award: This bestseller tells the inspirational true story of a girl with cerebral palsy and the mother who wouldn't give up on her. In 1940, when Karen Killilea was born three months premature and developed cerebral palsy, doctors encouraged her parents to put her in an institution and forget about her. At the time, her condition was considered untreatable, and institutionalization was the only recourse. But in a revolutionary act of faith and love, the Killileas never gave up hope that Karen could lead a successful life. Written by Karen's mother, Marie, this memoir is a profound and heartwarming personal account of a young mother's efforts to refute the medical establishment's dispiriting advice, and her daughter's extraordinary triumph over seemingly insurmountable odds. Marie's activism spread awareness of the mistreatment of disabled people in America and led to the formation of multiple foundations, including United Cerebral Palsy. A larger-than-life story, Karen tells of a family's courage, patience, and struggle in the face of extreme difficulty. The New York Times wrote, "You'll want to read it most for Karen's own words: 'I can walk, I can talk. I can read. I can write. I can do anything.'" No se han encontrado descripciones de biblioteca. |
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This is the story of Karen Killilea who was born in 1940 with cerebral palsy. Her parents were told by the doctors and other medical specialist to put her in an institution and forget about her. Marie and James Killilea refused to do that.
They spent many many hours giving Karen the physiotherapy and occupational therapy that Karen needed in order for her to learn to speak clearly, to read and write, to walk (albeit with crutches) and to look after her own bodily needs (such as going to the bathroom).
This book also covers all the hard work that Marie did on pushing for a National Cerebral Palsy group (cerebralpalsyguidance dot com) that could sponsor research and push for legislation for those children born with physical and mental handicaps.
The Killilea family are Irish Catholics so there is some mention of religion. Mostly related to Karen's first communion, first confession and her confirmation. I just skipped over those parts.
I had first read this book more than 30 years ago back in the 1980s, before I left home, so this was a long overdue re-read for me. There is also a sequel called With Love From Karen. I may be reading that soon as well. ( )