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"Based on the pioneering New York Times series, About Us collects the personal essays and reflections that have transformed the national conversation around disability. Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them-About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them. Since its 2016 debut, the popular New York Times' "Disability" column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, "Nothing about us without us," this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience-stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond. Reflecting on the fraught conversations around disability-from the friend who says "I don't think of you as disabled," to the father who scolds his child with attention differences, "Stop it stop it stop it what is wrong with you?"-the stories here reveal the range of responses, and the variety of consequences, to being labeled as "disabled" by the broader public. Here, a writer recounts her path through medical school as a wheelchair user-forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to "stretch ourselves toward a world where all bodies are exquisite." With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm. In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children. With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities"--… (más)
A wonderful always edifying, often moving, collection of articles originally published by the New York Times in its Disability Series. Each piece covers some aspect of being disabled. What does a morning look like for a person with paraplegia? After you have been hospitalized for severe mental illness, how does that change your worklife and the way you are perceived by colleagues? How do you sustain a marriage and parenting when your spouse becomes your caretaker after diagnosis of a progressive degenerative illness? What is it like to have an invisible disability that is easy for people to disregard or scoff at? When you have a genetic disability how does that impact your decision to procreate (and what does it say about your life if tests show that a child will have that disability and parents chose to terminate for that reason?) Why does everyone seem to think people with disabilities are (or should be) inspirational when they are just living their lives? Those issues and many more are covered here. I learned so much from the opportunity to listen to these honest eye-opening articles, and the writing is uniformly excellent. As with any collection some of these pieces work better than others, but it's the New York Times so you can bet on a certain standard of quality. Recommended to all. ( )
"Based on the pioneering New York Times series, About Us collects the personal essays and reflections that have transformed the national conversation around disability. Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them-About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them. Since its 2016 debut, the popular New York Times' "Disability" column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, "Nothing about us without us," this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience-stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond. Reflecting on the fraught conversations around disability-from the friend who says "I don't think of you as disabled," to the father who scolds his child with attention differences, "Stop it stop it stop it what is wrong with you?"-the stories here reveal the range of responses, and the variety of consequences, to being labeled as "disabled" by the broader public. Here, a writer recounts her path through medical school as a wheelchair user-forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to "stretch ourselves toward a world where all bodies are exquisite." With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm. In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children. With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities"--
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