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Cargando... The Still Point of the Turning World (2013)por Emily Rapp
  
Ninguno Actualmente no hay Conversaciones sobre este libro.  RachelRachelRachel | Nov 21, 2023 |   So, yeah, this book is crammed with epigraphs, quotes, and literary analysis as the author writes an academic examination of grief while dealing with the terminal diagnosis for her infant son. I found it hard to engage with the author as she constantly pushed other people's thoughts between us. This is not the sort of book I would usually read, but I was intrigued by the notion of reading Emily Rapp's take on the same events covered in her ex-husband's recent and moving graphic memoir, Ronan and the Endless Sea of Stars. Their takes on the events aren't different, per se, but the way they processed them into their writing is very different. Reading the two together is sort of interesting, but if you can only read one, go for the graphic novel. (  ) villemezbrown | Aug 5, 2023 | Narratives about a child's illness are a tough genre that have to tread a line between exploiting the child and turning it into something that is all about the parent. Rapp has chosen the latter, but her focus is on her own experience of grieving a child who has not yet died (at the time of writing). What might be narcissistic in other hands is simply pain flung onto the page. It is immediate and almost unbearable, asking us to look up close at the thing parents least want to consider. (  )1  arosoff | Jul 11, 2021 |  ) AleAleta | Sep 1, 2013 | TSPOTTW goes into great detail about Emily Rapp's worldwide travels and her literary interests, and tells much less about her son's brief life with Tay-Sach's disease. The book also lacks the scientific and medical detail that would make it valuable to a broader audience. On the one hand it seems crass to criticize a book by a mother whose child died after a long, slow, heartbreaking decline. But on the other, I felt about this book the same way I felt about Wild. I'm glad I read both books, but by the time I got to the conclusions of both of them, I had had quite enough of both authors. (  ) akblanchard | Mar 25, 2013 | sin reseñas | añadir una reseña
Distinciones
"Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future. The Still Point of the Turning World is the story of a mother's journey through grief and beyond it. Rapp's response to her son's diagnosis was a belief that she needed to "make my world big"--to make sense of her family's situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley's Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life"-- No se han encontrado descripciones de biblioteca. |
Debates activosNingunoCubiertas populares
 Google Books — Cargando...GénerosSistema Decimal Melvil (DDC)618.92Technology Medicine and health Gynecology and Pediatrics Pediatrics & Geriatrics Pediatric CareClasificación de la Biblioteca del CongresoValoraciónPromedio: (3.71)
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1
Rapp made some good points and observations in the first half of the book, particularly on what it's like to live with a disability (read: not as devastating as people imagine). The second half dragged for me, and felt like filler. Perhaps this was just because the author and I have very different personalities and so we grieve very differently.
It was sad to see that though she had grown up in a Christian family, the author never became a Christian herself, and her spiritual beliefs are a conglomeration of various religions and systems. Because of this, she doesn't necessarily believe in God or heaven, and so has no assurance of life after death for her son. This left the book without any real conclusion, and that contributed to my not liking the second half much.
I hate to complain about a book like this, that's so personal, but I also wished she had spent a few more minutes describing Tay-Sachs, the rare disease her son has. I'd never heard of it, and the book didn't give me a clear picture of what it actually is.
Rapp quotes a lot of poetry, which just isn't my thing, and some of the language was a bit flowery for me. There was also quite a bit of profanity.
I wouldn't bother to recommend this one. It's one of those books I'll barely remember a year from now. It's already fading fast... (